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North American Mitochondrial Disease Consortium Patient Registry and Biorepository (NAMDC)

Sponsor

Columbia University

Pharma

Typical Pay Range

$25 – $500

Illustrative estimate only - not verified by this sponsor. Contact the study team for actual compensation.

About This Study

The North American Mitochondrial Disease Consortium (NAMDC) maintains a patient contact registry and tissue biorepository for patients with mitochondrial disorders.

Your Journey

What happens when you apply

📞

Contact Study Team

5 min

Reach out via phone or email to express interest

💬

Phone Screening

15-30 min

Brief call to discuss your health history

🏥

In-Person Visit

2-4 hours

Medical screening at the research site

🚀

Start Participation

Varies

Begin your journey in the study

Questions to Ask

What's the exact compensation schedule?

What are the potential side effects?

Can I withdraw at any time?

Phase

Observational

Enrollment

1,000 participants

Sites

17 locations

Timeline

Jan 2011 - Dec 2026

Conditions Studied

Mitochondrial DisordersMitochondrial Genetic DisordersMitochondrial DiseasesDisorder of Mitochondrial Respiratory Chain ComplexesDeletion and Duplication of Mitochondrial DNA

Study Locations

University of California San Diego

San Diego, California, United States

Lucile Packard Children's Hospital

Stanford, California, United States

Children's Hospital of Colorado

Aurora, Colorado, United States

Children's National Medical Center

Washington D.C., District of Columbia, United States

University of Florida

Gainsville, Florida, United States

Eligibility

Sex:ALL

Full Criteria

Inclusion Criteria:

* Patients diagnosed with or suspected to have a mitochondrial disorder
* Adult carriers of known mitochondrial DNA mutations
* Patients with laboratory analysis indicative of a mitochondrial disorder.
* Medical information and tissue samples are also accepted from deceased individuals who fulfill the above criteria.

Exclusion Criteria:

* Patients not suspected of having a mitochondrial disorder
* Patients not suspected of carrying a mitochondrial DNA or nuclear DNA mutation that affects mitochondrial function.

NCT01694940

View on ClinicalTrials.gov Browse More Trials

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Trials by City

San Diego, California Stanford, California Aurora, Colorado Washington D.C., District of Columbia Gainsville, Florida Boston, Massachusetts

imaguineapig pulls live data from ClinicalTrials.gov (NIH/NLM).Illustrative estimate only - not verifiedPay estimates are approximate ranges based on study type and are not confirmed by sponsors — actual compensation may differ. Eligibility indicators use limited criteria (age, sex) only. We do not provide medical advice. Always contact the study team directly to confirm compensation, full eligibility, and risks before enrolling.